Inaugural posts are always a tricky thing, but drawing on years of experience with my other blogs this should not be too difficult. I thought a good starting point would be to explain why I put up this blog.
If you have been following my main blog, you know that for the last few years I have been battling with the onslaught of a chronic illness called Sarcoidosis, an auto-immune disease that has ruined my lungs and does a good bit of damage to other organs as well. What bad the illness doesn’t do, the medication takes care of. Slowly, but steadily I have therefore turned from a reasonably fit and healthy person that could cycle 120 km tours without thinking much of it into a guy that can barely climb up five flights of stairs to his flat. A person that could sit in front of the computer for hours on end late until after midnight and that now can barely concentrate enough on some days to write these blog posts.
Because of this, naturally I spend a lot of time at doctors/ physicians and with other medical treatments and diagnostics. That being so, I now have quite a bit of first-hand experience with hospitals, medications, medical aides and so on and from reading a lot even understand a bit of the medical mumbo-jumbo (I think). I have also developed my own little strategies at making things easier to get through the day. Sharing that knowledge may alleviate a few concerns and help you have a better life with your illness or handicap.
Of course this will always be a limited view since I cannot tell you what people with cancer treatments actually go through (and I’m glad that I didn’t have to until now) as I cannot tell you many other things. This is also not meant to replace a proper medical supervision and counseling. You also won’t find stuff like the perfect diet tips here beyond how it’s relevant for some medical stuff. God knows I could lose a few kilos, but this is not what this blog will be about. In the end, the main motivation is to clear up some common misunderstandings, misconceptions and prejudice toward people going through such stuff from a very personal point and it will quite often not reflect what you read on scientific pages or get advised on similar sites that deal with health issues.
I hope you will enjoy my musings and stop by every now and then. Feel free to ask questions (even intimate ones) and provide your own views.